tag:blogger.com,1999:blog-7504686986568465035.post809528086132323602..comments2023-08-05T04:13:16.382-07:00Comments on Lyme Disease Scotland - get info, get treated, get better.: The four week flare-up and spirochete videoTootshttp://www.blogger.com/profile/06805366948101043429noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7504686986568465035.post-56752926821375253602017-11-26T08:29:31.059-08:002017-11-26T08:29:31.059-08:00THANKS for this posting i had my first 4 wk flare ...THANKS for this posting i had my first 4 wk flare up and it was shocking..<br />so demoralising.. wow.. from reading what you wrote i could identify this eventAnonymoushttps://www.blogger.com/profile/15910404546074707908noreply@blogger.comtag:blogger.com,1999:blog-7504686986568465035.post-58522061461513601762015-09-17T14:53:00.275-07:002015-09-17T14:53:00.275-07:00Inialating* Sorry brain damage affects my spelling...Inialating* Sorry brain damage affects my spelling! Anonymoushttps://www.blogger.com/profile/02286831643865248507noreply@blogger.comtag:blogger.com,1999:blog-7504686986568465035.post-68558592375117424722015-09-17T14:43:22.731-07:002015-09-17T14:43:22.731-07:00Hi there...
I'm not sure how old this thread i...Hi there...<br />I'm not sure how old this thread is or of anyone will see my comment but I figured I would go out on a very achy limb and try! I can totally relate to these flare cycles! Mine come about every 4 to 6 weeks and I hadn't thought about it before but maybe there is some correlation between the two, I thought I would share my symptoms to see if anyone can relate, this is usually how the cycle starts<br /><br />Digestive issues, chronic heartburn and constipation<br />Skin crawling (like there are bugs underneath my skin and cobwebs on my nose and cheeks)<br />My skin (mostly on my face) feels extremely sunburnt like I have been sitting in the sun for days without any sunscreen.<br />The inside of my nose gets inflamed and sores form, like little blisters<br />Rash on both of my cheeks that is very itchy, blisters form and then eventually burst making my face extremely painful! <br />I usually get one of these blisters on my arm somewhere, bigger than the facial ones that are fill of a clear substance that looks like water, they are incredibly painful until they burst<br />Flu like body aches and pains everywhere<br />Disabling fatigue. <br />Usually this whole cycle can last anywhere from one to two weeks, the only thing that seems to help is Azithromyacin (probably spelt wrong sorry) but I have such a hard time getting it, there are literally no LL doctors here on the island of Oahu (Hawaii) There is one doctor on the big island Sam Ruben who is a specialist in the field of Lyme but he isn't taking patients yet as he is still training. I am very dubious about paying for the Lyme testing as it's around $600 and Dr Ruben says that not everyone with Lyme tests positive which to me seems like a waste of money! I have been symptomatic for the past 6 years since I was involved in an accident in which I broke my back and suffered a TBI (traumatic brain injury) Dr Ruben believes that the trauma of the accident woke up the previously comatosed Spirochetes and it has been a full blown party ever since! I believe I contracted Lyme back in 86 after a friend's tick infested dog jumped on my healing appendectomy stitches causing a massive infection, I now looking back believe that the dog was probably infected with Lyme itself and passed it on to me. This just seems to be the most likely time although I have been bit by ticks on two other occasions during my life time. It now seems to be affecting my menstrual cycle as well, my usually regular as clockwork period is now 16 days late, 3 pregnancy tests all of which are negative. I have been reading that a lot of people with Lyme have also experienced issues with their menstrual cycle too. These little b@$#ards seem hell bent on completely initiating my body! It's so frustrating! Especially when there are no LL doctors here that can help me. It's quite literally like sitting in a waiting room waiting to die, it sucks!! <br />Boo xxAnonymoushttps://www.blogger.com/profile/02286831643865248507noreply@blogger.comtag:blogger.com,1999:blog-7504686986568465035.post-77460460300986561742013-03-21T11:55:45.730-07:002013-03-21T11:55:45.730-07:00I flare in 4-5 week cycles. I freak out each time ...I flare in 4-5 week cycles. I freak out each time it happens because I've only been treated for 5 months and keep thinking I'm just decompensating. I've been off abx for 5 weeks and am having a flare now. I've been searching on the interwebs to see if it's a common occurance and I'm glad to see I'm not the only one. Anonymoushttps://www.blogger.com/profile/09574602471732877163noreply@blogger.comtag:blogger.com,1999:blog-7504686986568465035.post-45750026120770766962013-03-18T17:48:56.091-07:002013-03-18T17:48:56.091-07:00Hi there, I was wondering how you went about looki...Hi there, I was wondering how you went about looking for the bacteria in a blood smear? Required magnification, any reagants required etc. I have access to microscopes at work so would be interested to have a wee look at my blood as I don't believe my negative ELISA tests either, but don't want to spend thousands on private diagnosis if it's all in my head. Thanks!Anonymoushttps://www.blogger.com/profile/13319252833775222207noreply@blogger.comtag:blogger.com,1999:blog-7504686986568465035.post-82685528909238229342012-09-18T08:31:54.164-07:002012-09-18T08:31:54.164-07:00Thanks for re posting this information. When I was...Thanks for re posting this information. When I was first ill I noticed that I had three weeks really bad and one week not quite so bad after many months of treatment( it took 7 months to get off steroids and give immune system a fighting chance too) I began to realise that I was having three better weeks and one really bad week.<br /><br />I stopped antibiotics over a year ago and noticed I still had these four weekly flares - I hadn't realised that we notice these whether we are on antibiotics or not and my guess is, it is a good indicator to add to the list that we are struggling with a Lyme infection. One has to question how many patients with relapsing illnesses or illnesses that flare in this cyclical manner, may well have an underlying condition of Lyme Disease, guess most have never even considered that.http://lookingatlyme.blogspot.co.uk/2012/09/relapsing-illness.html Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.com